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Dr Golly and the Experts

The road to diagnosis of Sanfilippo Syndrome, with Sarah Warden

Dr Golly and the Experts
Dr Golly and the Experts

Sarah Warden knew that her son, Callum wasn’t progressing as he should, but she could never have predicted what was causing the delays. Callum’s final diagnosis was Sanfilippo Syndrome, a rare genetic condition described as ‘childhood dementia’. This week, Sarah talks about how she had to persevere to get the right diagnosis, and what this rare condition means for her life and her family.

LINKS
Check out the Sanfilippo Children’s Foundation on Instagram https://www.instagram.com/sanfilippochildrensfoundation/
To visit the Sanfilippo Children’s Foundation website click HERE
To donate to Sarah’s fundraiser click HERE

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Dr Golly and the Experts
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