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by www.rareshare.org, www.raregenomics.org
Rare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)

Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)

Description

Seth Rotberg, 27, was diagnosed with Huntington’s Disease at age 20 and has since become an advocate for rare disease patients. He tells us about his experience dealing with his own diagnosis, and shares his advice for anyone dealing with a new disease diagnosis, especially young people.

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Episode

by www.rareshare.org, www.raregenomics.org