This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

This content is made possible through generous donations made by our listeners. In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through generous donations made by our listeners. In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Find out more about their mission on their website. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through donations made by our listeners. In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of viewers and listeners like you. This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s. To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/ Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here. To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems. Loving the Parkinson's Podcast? Listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers. Relevant Links Pain in PD Self-Assessment Tool Dr. Zawar’s Clinic Beyond Rehab Dr. Zawar’s program for pain in Parkinson’s Contact Dr. Zawar

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS). In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed: How to begin the process How to talk to your family and friends about DBS and your hopes and concerns about it What to expect during the approval process What the surgery is really like (and do you have to shave your head) What recovery is like and what kind of support you might need The challenges of programming your device and the joy that comes when you get it right The myths, challenges, and victories of DBS And more! We hope you enjoy it! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..." It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons. Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including: The commonly held view that people die with Parkinson's, not from Parkinson's Pesticides, chemical exposure, and other environmental risks Reasons for hope, including specific advice about exercise and diet The policy and funding implications of candid discussion of mortality in Parkinson's Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss: The research connecting loneliness and quality of life Common reasons you might become lonely How to find meaning and community The feeling of wanting to “give up” with Parkinson’s Ways to get involved How to get connected in rural communities What to do when you try to connect and it doesn’t work The importance of the quality of your relationships and more! We hope you enjoy! For the video recording, associated resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-the-value-of-meaning-purpose-and-community-in-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss: What is an OFF time? Distinguishing OFF times from other “feelings” The impact of stress on OFF times How to adapt your home for OFF times Optimizing your medications Non-motor symptoms associated with OFF times Rescue meds/rescue therapy Rational polypharmacy On demand and as needed medications Planning your schedule around OFF times Having a realistic expectations of tasks Taking brain breaks Can exercise reduce ON times? Do endorphins have anything to do with OFF times? and more! We hope you enjoy! For related resources, the video recording of this interview, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-motor-symptoms-during-off-times Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Jay Alberts discusses: The connection between cognition and freezing of gait What you can do to improve your cognitive and physical skills Music’s impact on walking and freezing of gait Deep brain stimulation The importance of managing postural instability and freezing of gait Assistive devices LSVT Big programming Dizziness and postural instability Festination of gait Laser canes & the importance of physical therapy Suggestions for a hunched back Strength training Retraining your brain to address freezing The "right" amount of exercise Causes of increased fall risk Boxing Stairs and freezing of gait Anxiety and freezing of gait For additional resources visit the accompanying blog post for this episode: http://davisphinneyfoundation.org/podcast-recording-freezing-of-gait-postural-instability-and-exercise-in-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss: Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something” The importance of “listening for the love” The fact that many hurtful comments come from the people we love and can often stem from misunderstanding How to use hurtful comments as a teaching moment Communicating to others that Parkinson’s doesn’t always have to be the topic of conversation Dealing with people who try to ascribe meaning to their Parkinson’s, who don’t understand the non-motor symptoms they struggle with, and who misinterpret going on disability Being asked to “stop shaking” during medical appointments When and how to share your Parkinson’s diagnosis with others How to explain the “inconsistencies” with Parkinson’s Their favorite things that people without Parkinson’s have said Visit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons

In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses: The neurological cause of motor symptoms Slowness of gut The subtypes of Parkinson’s Toe curling dystonia How to best prepare for your neurologist/movement disorder specialist visit The link between the severity of motor symptoms and non-motor symptoms The progression of motor symptoms Exercise to improve motor symptoms Supplements & Nutrition How to decrease fatigue How to treat double vision and visual-spatial issues and more! We hope you enjoy! For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-the-what-and-why-of-parkinsons-motor-symptoms-and-how-to-manage-them Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares: Why he chose to write the book Winter Stars about his journey as a caregiver rather than his own Parkinson’s diagnosis The roller coaster ride of navigating the emotional states that come along with caregiving The irrelevance of the truth and being right when dealing with caregiving Caregiving for a person with dementia What’s at the heart of being a caregiver The value of caregivers in our society Contending with grief throughout the process of caregiving Taking care of yourself as a caregiver The caregiving experience and its impact on your own concern for your future “Playing the scene you’re in” and more! We hope you enjoy! For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-a-conversation-with-dave-iverson-on-being-a-full-time-caregiver-for-ten-years Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss: Maintaining identity amidst caregiving The power of gratitude Communication with your person with Parkinson’s Being the care partner for a parent with Parkinson's Involving others in the care partner experience Not feeling selfish about setting boundaries Caring for someone with dementia Getting paperwork in order The balance between overstepping and understepping when it comes to decision making as a care partner Balancing caregiving with having children Full-time care facilities and more! We hope you enjoy! For the video recording, mentioned resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-the-role-of-parkinsons-care-partner Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists Soania Mathur, Wayne Gilbert, Robynn Moraites, and Sarah Zenner discuss: The fact that there’s no such thing as getting “away” from Parkinson’s Finding the balance between focusing on your Parkinson’s to live well but not letting it define you Parkinson’s as a “simmering pot” Being intentional about how you choose to speak about your Parkinson’s Emotionally accepting your diagnosis The importance of creating relationships with other people with Parkinson’s The impact of connection on your health Living your best life now Getting engaged in your hobbies Using a mindful approach to managing your Parkinson’s symptoms Coping strategies when Parkinson’s is overwhelming Focusing on the most meaningful things in your life and more! We hope you enjoy! Find the video recording, mentioned resources, and more at: http://davisphinneyfoundation.org/podcast-recording-getting-away-from-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation