In this episode, registered dietician and nutritionist Jess Schroeder discusses: Weight loss and weight gain Constipation Increased sugar cravings Gastric emptying The “right” diet for Parkinson’s Troubles with chewing and swallowing Timing of food intake Types of food for exercise Food and its relationship to sleep Eating well in assisted living and/or skilled nursing facilities Creating an eating schedule and routine For mentioned links, related resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-nutrition-and-parkinsons-with-jessica-schroeder

In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson’s Pamela Quinn talks about: Her story of diagnosis How she followed her own gut in her management of the diagnosis Her balance of using medications and lifestyle choices to manage her Parkinson’s Her organization, PD Movement lab, and its class/course offerings The importance of taking charge of your diagnosis For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-dancing-movement-medications-and-living-well-with-parkinsons-with-pamela-quinn

In this episode, Dr. Salima Brillman discusses: The what and why of nOH (neurogenic orthostatic hypotension) Treatments for nOH In the moment tricks for managing nOH episodes How to talk to your doctor about your symptoms The effect of food and lifestyle choices on nOH Click here for the accompanying blog post to this episode where you will find any mentioned links and resources, the video recording, and more.

In this episode, Dr. Aaron Haug discusses: How Parkinson’s is diagnosed The non-motor symptoms of Parkinson’s What’s happening in the brain to cause Parkinson’s symptoms Common initial treatment options The team approach to treating Parkinson’s Lifestyle changes to manage Parkinson’s Which online resources to trust Why to consider participating in research Most important advice for someone newly diagnosed Click here for the accompanying blog post where you can find the mentioned links, additional resources, the video recording, and more.

Episode Description: In this episode, panelists from our monthly Living with Parkinson’s Meetup discuss: The what and why of falling and freezing of gait in Parkinson’s The panelists’ experience with falling Strategies to prevent falling How music can be used to prevent falls Living alone and falling An overview of balance issues and what to do about them Click here for the accompanying blog post for this episode to find the transcript, mentioned links, video recording, and more.

In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about: Letting go of the feeling of “mutuality” Learning to embrace reality Why Parkinson’s is a couple’s disease How to adapt when the plan you had for your life changes The difference between self-care and after care Handling anger For mentioned links, additional resources, and the video recording visit: http://davisphinneyfoundation.org/podcast-terri-pease

In this episode, Dr. Joanne Hamilton discusses: The difference between a bad mood and a clinical mood disorder Not pathologizing normal emotions Depression versus a typical grieving period after receiving a diagnosis Depression versus anxiety and the symptoms of each Suicidal ideation and signs to look for that indicate seriousness Who to seek treatment from and where Exercise and socialization as the number one treatment The what and why of anxiety in Parkinson’s Treatment options for depression, anxiety, and mood changes The what and why of apathy If talk therapy may be right for you Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.

In this episode, Jan and her husband Bill Grimes share: How their life has changed since Jan got diagnosed with Parkinson’s How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire How Jan sees Parkinson’s as a blessing Her newly defined hobbies and passions, including sewing and poetry How Jan and Bill work together as a partnership to navigate Parkinson’s Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses: The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder The connection between sleep and psychosis Talking to your neurologist about psychotic symptoms Pharmacological and non-pharmacological treatments The relationship between psychosis and dementia Reducing the fear of psychosis How to calm your spouse/partner during a delusion Tracking mitigating factors that may contribute to psychotic episodes Common Q & A Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses: The definition of Parkinson’s disease psychosis and what causes it The difference between complex, simple, insightful, and non-insightful hallucinations Common types of delusions and hallucinations in Parkinson’s Risk factors for Parkinson’s disease psychosis The relationship between medications and Parkinson’s disease psychosis The prevalence of Parkinson’s disease psychosis What to do when someone is experiencing psychosis Things to help reduce psychotic episodes When to seek help for psychotic symptoms Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, the Living with Parkinson’s Meetup panelists discuss: The importance of self-compassion Asking for help Symptoms worsening during menstruation Finding things that reinvigorate you Suicidal ideation Negative self-talk, mindfulness, and breathing Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, the Living with Parkinson’s Meetup panelists discuss: The fact that Parkinson’s does progress, and treatments and techniques begin to lose their efficacy The need to slow down and do less due to Parkinson’s symptoms The importance and art of pivoting, a necessary skill when you have a progressive disease The urge to talk less and begin to isolate when symptoms worsen The importance of not comparing yourself to those around you, as difficult as it is Learning self-care Visit the blog post for this episode here to find related resources and more.

In this episode, Heather Kennedy, a person with Parkinson’s who has been living with the diagnosis for 12 years discusses: Three articles she’s recently written called “Gifted”, “Poison for Breakfast”, and “Sweating it Out” Her journey with Deep Brain Stimulation (DBS) The difficulty of unpredictable ON and OFF times in Parkinson’s and how those times impact relationships How her views have changed since the initial days of her diagnosis The difficulty of discerning between symptoms that are due to Parkinson’s, medications, or something else entirely The burden of explaining Parkinson’s to those who don’t understand The importance of having compassion for people with Parkinson’s and nurturing that compassion in all areas of life Visit the blog post for this episode here to find related resources, the video recording, and more.

In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss: The research connecting loneliness and quality of life Common reasons you might become lonely How to find meaning and community The feeling of wanting to “give up” with Parkinson’s Ways to get involved How to get connected in rural communities What to do when you try to connect and it doesn’t work The importance of the quality of your relationships For the video recording, associated resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-the-value-of-meaning-purpose-and-community-in-parkinsons

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss: What is an OFF time? Distinguishing OFF times from other “feelings” The impact of stress on OFF times How to adapt your home for OFF times Optimizing your medications Non-motor symptoms associated with OFF times Rescue meds/rescue therapy Rational polypharmacy On demand and as needed medications Planning your schedule around OFF times Having a realistic expectations of tasks Taking brain breaks Can exercise reduce ON times? Do endorphins have anything to do with OFF times? For related resources, the video recording of this interview, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-motor-symptoms-during-off-times

In this episode, Dr. Jay Alberts discusses: The connection between cognition and freezing of gait What you can do to improve your cognitive and physical skills Music’s impact on walking and freezing of gait Deep brain stimulation The importance of managing postural instability and freezing of gait Assistive devices LSVT Big programming Dizziness and postural instability Festination of gait Laser canes & the importance of physical therapy Suggestions for a hunched back Strength training Retraining your brain to address freezing The "right" amount of exercise Causes of increased fall risk Boxing Stairs and freezing of gait Anxiety and freezing of gait For additional resources visit the accompanying blog post for this episode: http://davisphinneyfoundation.org/podcast-recording-freezing-of-gait-postural-instability-and-exercise-in-parkinsons

In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss: Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something” The importance of “listening for the love” The fact that many hurtful comments come from the people we love and can often stem from misunderstanding How to use hurtful comments as a teaching moment Communicating to others that Parkinson’s doesn’t always have to be the topic of conversation Dealing with people who try to ascribe meaning to their Parkinson’s, who don’t understand the non-motor symptoms they struggle with, and who misinterpret going on disability Being asked to “stop shaking” during medical appointments When and how to share your Parkinson’s diagnosis with others How to explain the “inconsistencies” with Parkinson’s Their favorite things that people without Parkinson’s have said Visit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons

In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses: The neurological cause of motor symptoms Slowness of gut The subtypes of Parkinson’s Toe curling dystonia How to best prepare for your neurologist/movement disorder specialist visit The link between the severity of motor symptoms and non-motor symptoms The progression of motor symptoms Exercise to improve motor symptoms Supplements & nutrition How to decrease fatigue How to treat double vision and visual spatial issues For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-the-what-and-why-of-parkinsons-motor-symptoms-and-how-to-manage-them

In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares: Why he chose to write the book Winter Stars about his journey as a caregiver rather than his own Parkinson’s diagnosis The roller coaster ride of navigating the emotional states that come along with caregiving The irrelevance of the truth and being right when dealing with caregiving Caregiving for a person with dementia What’s at the heart of being a caregiver The value of caregivers in our society Contending with grief throughout the process of caregiving Taking care of yourself as a caregiver The caregiving experience and its impact on your own concern for your future “Playing the scene you’re in” For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-a-conversation-with-dave-iverson-on-being-a-full-time-caregiver-for-ten-years

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss: Maintaining identity amidst caregiving The power of gratitude Communication with your person with Parkinson’s Being the care partner for a parent with Parkinson's Involving others in the care partner experience Not feeling selfish about setting boundaries Caring for someone with dementia Getting paperwork in order The balance between overstepping and understepping when it comes to decision making as a care partner Balancing caregiving with having children Full-time care facilities For the video recording, mentioned resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-the-role-of-parkinsons-care-partner