When he founded Cure Rare Disease in 2018, Rich Horgan was primarily focused on finding a treatment for his younger brother Terry, who had an ultra-rare form of Duchenne Muscular Dystrophy (DMD).
Suffering from a disease that has no cure, Terry served as a “selfless, brave, and courageous” figure that Rich continues to draw inspiration from when seeking new, innovative solutions to treat this progressive, neurodegenerative condition.
Join us for this interview as Rich discusses the origins of Cure Rare Disease, Terry’s ongoing legacy, the collaborative effort it takes to advance the drug development journey, the important role of the patient voice when developing treatments, and the future of rare disease research.
Show Notes
What We Owe Terry Horgan: Reflections from Providers, Family, and Scientists
Letter From Terry's Parents
The Disruptors - Meet Rich
In Vitro Assays for Duchenne Muscular Dystrophy
2022 World Congress Video
Duchenne Muscular Dystrophy Studies
Rare Disease Research for Drug Development
Scientific Collaboration Leads to Faster Drug Development
Cure Rare Disease