AAMDSIF Podcasts for Patients

About this podcast

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation. For more, see our podcast page at: https://www.aamds.org/podcast/

AAMDSIF Podcasts for Patients

Episodes

2020
AAMDSIF Podcast for Patients: MDS - Inqovi Treatment with Dr. Amer Zeidan
Dr. Amer Zeidan from Yale School of Medicine explains the uses, benefits, and risks of the newly approved treatment, Inqovi.
August 10, 2020
18 min
AAMDSIF Podcast Episode 49: Dr. Eunice Wang discusses Secondary MDS
Dr. Eunice Wang explains the origin and treatment of secondary MDS. Dr. Wang is the Chief of the Leukemia Service at Roswell Park Comprehensive Center.
May 15, 2020
11 min
AAMDSIF SERIES Podcast Episode 48: Dr David Steensma discusses MDS and toxins
Dr. David Steensma discusses MDS and toxins with Leigh Clark, Patient Educator. Dr. Steensma is an associate professor at Harvard Medical School and faculty member in the leukemia program at the Dana-Farber Cancer Institute and Brigham and Women's Hospital in Boston, Massachusetts and the Edward P. Evans Chair in MDS at Dana-Farber Cancer Institute
May 15, 2020
19 min
AAMDSIF Podcast Episode 47: Dr. Yacoub explains MDS-MPNs overlap
Dr. Abdulraheem Yacoub talks with Leigh Clark about MDS-MPNs overlap. He includes how molecular testing is used in determining treatment options. He also discusses the newly approved drug, Luspatercept, for the treatment of MDS and MDS-MPN overlap syndromes.
April 17, 2020
21 min
AAMDSIF Podcast Episode 45: PAN Foundation's grants for patients
During COVID-19, the PAN Foundation is giving grants to certain AML and CML patients. Listen to this broadcast to learn the details.
April 13, 2020
15 min
AAMDSIF Podcast for Patients Episode 46: Luspatercept with Dr. Amit Verma
Discussion of the recent approval of Luspatercept with Doctor Amit Verma, Director of the Division of Hematologic Malignancies and a Professor of Oncology at the Albert Einstein College of Medicine in New York City. #MDS #treatingMDS
April 13, 2020
20 min
AAMDSIF Podcast for Patients Episode 44: Dr. Gustavo Rivero on Low-Risk MDS and Supportive Care
Dr. Gustavo Rivero describes strategies for management of Low-Risk MDS, or Myelodysplastic Syndromes. He details supportive care for these patients, including transfusions and iron overload therapies.
April 1, 2020
15 min
AAMDSIF Podcast Episode 43: Dr. Vu Duong
Dr Vu Duong explains risk classifications for MDS. He dives into IPSS and IPSS-R scores, focused on helping patients to understand the meanings of high-risk and low-risk MDS.
April 1, 2020
18 min
AAMDSIF Podcast Episode 42: Julie Lowe explains March for Marrow and other events
Julie Lowe, AAMDSIF Director for Strategic Initiatives, anticipates your questions about getting involved with the Aplastic Anemia and MDS International Foundation in this recent interview.
March 13, 2020
16 min
AAMDSIF Podcast Episode 41: MDS to AML, treatment and options with Dr. Tiffany Tanaka, UC San Diego
Dr. Tiffany Tanaka from the University of California, San Diego explains the development of High-Risk MDS into AML. She talks about new diagnostic and treatment regimens for these patients.
March 13, 2020
17 min
AAMDSIF Podcast Episode 40: Eliot thrives after transplant and clinical trial for MDS - AML
MDS: Eliot shares his journey of diagnosis, treatment, transplant, and clinical trial for MDS with IDH1 and IDH2 mutations and AML. Myelodysplastic Syndromes, Acute Myeloid Leukemia, bone marrow transplant
February 18, 2020
20 min
AAMDSIF Episode 39
Dr. Ehab Atallah describes advances in bone marrow transplant to treat MDS, Myelodysplastic Syndromes, in older patients.
February 10, 2020
11 min
AAMDSIF Podcast Episode 38
Thomas was too young for MDS, typically. His mom, Terri, describes diagnosis, treatment, and survivorship for him here. #myelodysplasticSyndromes #myelodysplasia #BoneMarrowFailure
February 10, 2020
31 min
AAMDSIF Podcast Episode 37
Three generations of MDS, and Leigh Ann is stuck in the middle! Discover not only how she and her son are surviving, but also how far clinical research has advanced since her mother's disease here.
February 6, 2020
15 min
AAMDSIF Podcast Episode 36
Leticia stays active and happy after conquered aplastic anemia was followed by MDS, or Myelodysplastic Syndromes. Discover how she does it here!
February 6, 2020
17 min
2019
AAMDSIF Podcast Episode 35
Why would I choose a clinical trial? What kind of additional care would I receive? How do I know if I qualify? Christina Cline, RN, BSN, CCRC explains both patient and nurse navigator roles in this recent recording.
December 6, 2019
34 min
AAMDSIF Podcast Episode 34
Mark had no symptoms prior to diagnosis. Even more surprising was the "watch and wait" treatment plan! Listen to this recently recorded episode where Mark describes living as an MDS survivor now.
December 6, 2019
21 min
AAMDSIF Podcast Episode 33 B.Anderson
Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.
October 28, 2019
22 min
AAMDSIF Podcast - Episode 32
Dr. Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.
October 21, 2019
20 min
AAMDSIF Podcast - Episode 31
New marrow: SCT, BMT, and GvHD with Dr. Corey Cutler, Medical Director, Stem Cell Transplantation Program at Dana Farber Cancer Institute. Learn all about the risks, benefits, and side effects of the transplantation process in this recent recording.
October 8, 2019
21 min

AAMDSIF Podcasts for Patients

About this podcast

Categories

About this podcast

Categories

AAMDSIF Podcasts for Patients

Episodes

AAMDSIF Podcast for Patients: MDS - Inqovi Treatment with Dr. Amer Zeidan

AAMDSIF Podcast Episode 49: Dr. Eunice Wang discusses Secondary MDS

AAMDSIF SERIES Podcast Episode 48: Dr David Steensma discusses MDS and toxins

AAMDSIF Podcast Episode 47: Dr. Yacoub explains MDS-MPNs overlap

AAMDSIF Podcast Episode 45: PAN Foundation's grants for patients

AAMDSIF Podcast for Patients Episode 46: Luspatercept with Dr. Amit Verma

AAMDSIF Podcast for Patients Episode 44: Dr. Gustavo Rivero on Low-Risk MDS and Supportive Care

AAMDSIF Podcast Episode 43: Dr. Vu Duong

AAMDSIF Podcast Episode 42: Julie Lowe explains March for Marrow and other events

AAMDSIF Podcast Episode 41: MDS to AML, treatment and options with Dr. Tiffany Tanaka, UC San Diego

AAMDSIF Podcast Episode 40: Eliot thrives after transplant and clinical trial for MDS - AML

AAMDSIF Episode 39

AAMDSIF Podcast Episode 38

AAMDSIF Podcast Episode 37

AAMDSIF Podcast Episode 36

AAMDSIF Podcast Episode 35

AAMDSIF Podcast Episode 34

AAMDSIF Podcast Episode 33 B.Anderson

AAMDSIF Podcast - Episode 32

AAMDSIF Podcast - Episode 31