Know Stroke Podcast

December 31, 2023

Replay: Let's make it okay to say you're not okay

Chime In, Send Us a Text Message! Episode 65: Closing out 2023 with a replay of our highest downloaded episode of the year. Tim Whitmire joined us for episode 48, he is a young stroke survivor and founder of F3 Nation. He speaks to us about how he grew a community built around fitness, fellowship, and faith into the largest mens' fitness movement in the US, and how those pillars transferred into his rehab journey.Thank you to all of our listeners and guests that joined us in 2023. We look forward to continuing to bring you conversations with survivors, caregivers, and clinical experts bringing change to the stroke care pathway in 2024. Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/About our guest:Whitmire started as a freelance journalist, then got a job at the Associated Press and covered Harvard Men’s Basketball. He moved to the Providence Bureau of the Associated Press and eventually to New York City. He was transferred to Lexington, Kentucky to work as a sports writer and moved to Charlotte, North Carolina after that. He worked at the Charlotte Observer and then returned to the Associated Press to work as the head of the Charlotte Bureau until 2006. Tim Whitmire was working for the AAP when he decided to look for work in Charlotte, NC. He ended up getting hired in a marketing and business development role at a sell side and investment bank. He then co-founded a firm called Black Arch Partners, where he worked for a few years. After leaving the second bank, he found his way into his current work as an executive strategy consultant. Will then asked him about his nonprofit, F3 Nation. The Mission of F3 is to plant, grow and serve small workout groups for men for the invigoration of male community leadership. Show highlights:Forming the movement of F3 NationFrom 5am workouts to stroke rehabHow Fitness, Fellowship, and Faith impacted Tim's recoveryThe truths of post stroke depressionShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

58 min

November 19, 2023

Achieving Balance (Part 1): Food as Medicine to Fuel Stroke Recovery

Chime In, Send Us a Text Message! Episode 64 - Achieving Balance (Part 1): Food as Medicine to Fuel Stroke Recovery A comprehensive stroke recovery plan of care often includes a combination of physical, occupational, and speech therapy, along with other medical interventions. These therapies are vital for regaining physical and cognitive abilities. Often overlooked, however, in the stroke recovery pathway is the quality of a stroke survivor’s diet. Quality nutrition offers the potential to improve stroke outcomes by promoting healing, providing high performance fuels to support the physical demands of rehabilitation as well as offering key nutrients for boosting brain resilience to reduce the risk of future strokes. We needed to look no further for an expert than our show co-host David Dansereau for today’s episode on using food as medicine in stroke prevention and recovery. When David had a stroke at 39 from a congenital heart defect, he realized the challenges a stroke presented and took action by setting smart goals to optimize his diet in support of his long term rehabilitation plans. He ultimately achieved his goal of returning to running and completed the Boston Marathon.In this episode David shares his nutrition playbook and breaks down 3 key nutrition principles (his 3F’s) that can provide a solid foundation for improving your nutrition IQ and complimenting your healing journey along with the help of your own health care team. About David DansereauDavid has a clinical background as an experienced physical therapist as well as a former registered dietitian and nutritionist in private practice. On this episode David will be sharing what inspired him to study nutrition and later write a best selling book (Body in Balance) and how these early experiences in healthcare, corporate wellness and behavioral health research have shaped his career today.David’s mission is to promote the use of nutrition and therapeutic exercise as the best medicine for extending health span and managing all chronic conditions. This proactive mindset paved the way for David to build several businesses, including private practices and mobile rehab offerings. Most recently, as the founder of both PTC Physical Therapy and SmartMovesPT his continues his focus on patient engagement and u New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

56 min

October 29, 2023

2023 World Stroke Day #GreaterThanStroke

Chime In, Send Us a Text Message! Special Edition Episode 63 for World Stroke Day #GreaterThanStroke This year’s theme for World Stroke Day 2023 is stroke prevention. One in four of us will have a stroke in our lifetime. It is estimated that 90% of those strokes could be prevented by addressing a small number of risk factors including high blood pressure (hypertension), irregular heartbeat (atrial fibrillation), smoking, diet and exercise. The Know Stroke Podcast stands behind this mission as well so together we can be #GreaterThanStroke. Today we join the global stroke community to raise awareness and drive action on stroke prevention. Get involved by sharing this episode and the new stroke resource the World Stroke Organization and In The Room have released with stroke survivor and podcast guest from Episode 52, Stacie Broek. In this special edition episode hear from Stacie as we bring her back to introduce this special project that will help raise awareness and provide a new interactive AI enhanced resource for survivors, caregivers and families impacted by stroke.Before introducing Stacie, co-hosts Mike and David reflect on episodes that resonated with them this past year. They also discuss the work they will be doing to close out 2023 with a focus on nutrition, exercise and better health strategies to help you achieve balance moving into the new year.About Stacie Broek:Stacie Broek is a stroke survivor, memoirist, and advocate for stroke awareness. After surviving a carotid artery dissection in 2019, she embarked on a mission to redefine the stroke narrative and provide support to fellow survivors and their families. Stacie is a driving force behind "In the Room with a Stroke Survivor," a transformative project in collaboration with the World Stroke Organization and In the Room.Enter in the Room with a Stroke SurvivorAbout World Stroke Organization:The World Stroke Organization is the only global body solely focused on stroke and represents stroke specialists in clinical, research and community settings. The World Stroke Organization is dedicated to reducing the global burden of stroke through prevention, treatment and continuity of care.About In The Room:In the Room is a conversational media platform that connects individuals, organizations and causes with a global community. It provides a spac New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

35 min

October 19, 2023

Maximizing Safe Home Mobility Access: Addressing one of the most important issues in stroke discharge and recovery with Justin Oakley of Oakley Home Access

Chime In, Send Us a Text Message! Episode 62: Justin Oakley, MSOTR/L CAPS of Oakley Home AccessPreparing your home for all of life's changes after a stroke can be overwhelming. In fact, the word discharge can be terrifying for both survivor, caregiver and treating therapists alike to provide access to continued safe mobility solutions. We’ve heard many times from past expert rehabilitation guests on our podcast that they predict ‘the future of stroke recovery will be in the home’. But that home must be safe and accessible first. So, how do we make it the best place to be? For the stroke survivor, this is not a nicety, it is a necessity and adapting for safe home access is one of the largest unseen issues in stroke recovery. In today’s episode we wanted to dive into this topic and offer solutions with a home access expert.[Did you know? Currently, according to AARP statistics, less than 5% of all US homes have features needed to support a safe and accessible (aging in place) home even though up to 90% of older adults surveyed want to stay in their home as long as possible.] About Our Episode 62 GuestWe welcomed our expert guest Justin Oakley, OTR/L Co-founder and Chief Development Officer at Oakley Home Access. Justin is a registered & licensed Occupational Therapist as well an Executive Certified Home Modification Provider. Oakley Home Access can assist a wide array of community members ranging from stroke survivors needing home access accommodations, children with special needs to the elderly striving to age-in-place. Oakley Home Access will provide free home safety assessments and full service home modifications, ranging from removing area rugs to providing a variety of adaptive equipment to assist mobility throughout the home, including complete remodels. Justin and his co-founding partner Mike Vieira (experienced contractor + CAPS certified) provide dual expertise (clinical + construction) that is unmatched and provides a unique educational piece that has become their secret sauce to success and foundation for plans for expansion. In this episode we explore how their education, empathy and energy are the key ingredients that keep their team’s core values aligned to help customers realize their goals for continued safe access and independence in their home. Reach out to our guest at Oakley Home A New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

84 min

October 1, 2023

Leading the Stroke Care Revolution: A Conversation with Dr. Lee H. Schwamm

Chime In, Send Us a Text Message! Episode 36 Interview with Kyle Zebley, Senior Vice President of Public Policy at the American Telemedicine Association and Executive Director, ATA Action In this episode you’ll be hearing from the first policy expert we’ve had on our show and we don’t think we could have brought you a better one! It is important for us to emphasize this interview would not have been possible without the great coordinated cooperation from Gina Cella Senior VP of Strategic Connections and Ann Mond Johnson CEO of the ATA, so we want to thank them both here as well along with all the great work their team does every day to support this common mission of advancing telehealth. We’ve learned lessons through the pandemic of telehealth’s ability to bridge care gaps, improve care coordination and fill healthcare workforce shortages. With all that now known, virtual care delivery could still be in danger of heading over the “telehealth cliff” without permanent policy changes and action as Kyle explains it well in this episode. Mike and I both believe strongly the impact of policy changes will be a critical piece in shaping future delivery of rehabilitative stroke care and recovery into the home with improved outcomes. So let’s dive in, listen and learn more from Kyle! Meet Our Guest Kyle Zebley is Vice President of Public Policy at the American Telemedicine Association (ATA) and Executive Director of ATA Action. For those not familiar with the American Telemedicine Association…The ATA is the only organization completely focused on advancing telehealth, and is committed to ensuring that everyone has access to safe, affordable, and appropriate care when and where they need it, enabling a wider reach and more access to care for more people. Kyle’s BioSketch Previously, Kyle was the Chief of Staff in the Office of Global Affairs (OGA) at the U.S. Department of Health and Human Services (HHS). He collaborated with senior leadership from HHS, the White House and other cabinet departments to develop, advise, and promote U.S. global health policy, including in such policy areas as drug pricing, medical devices, global health security, and non-communicable diseases. Prior to HHS, he worked in Congress as a Legislative Direc New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

58 min

September 16, 2023

Pioneering Stroke Research: Dr. Broderick's TPA Breakthrough and StrokeNet Leadership

Chime In, Send Us a Text Message! In Episode 60 of the Know Stroke Podcast we sat down with the esteemed Dr. Joseph Broderick.Guest Bio:Joseph Broderick, MD, a distinguished stroke expert and neurologist, has been a crucial part of UC Physicians since 1987. In 1996, he became a professor of Neurology at the University of Cincinnati, and from 2000-2014, held the Albert Barnes Voorheis Chair for the Department of Neurology at the UC College of Medicine. From 2014 through the present, he has served as the Director of the UC Gardner Neuroscience Institute. Contributing to medical care within the broader community as a founding member of the UC Stroke team, he has served as a courtesy staff member at 20 regional hospitals during the past 30 years and as a full staff member at all UC Health hospitals.Currently, he is the principal investigator for the National Coordinating Center for StrokeNET, an NIH-funded network of 25 regional stroke centers and 500 hospitals nationwide focusing on clinical trials and stroke care as well the principal investigator of two sizeable global stroke trials. Without a doubt, he has played a pivotal role in UCMC and UC being one of the leading Comprehensive Stroke Centers in the world.Show Notes:Part 1: Inspiration and ResearchSegment 1: What Drives HimDr. Broderick's inspiration for becoming a stroke researcher and clinician.His continued motivation to improve stroke treatment and patient outcomes.Segment 2: Past & Present ResearchInsights into Dr. Broderick's remarkable career in stroke research.Exploration of areas within acute stroke that warrant further research.Segment 3: Intracerebral Hemorrhage TreatmentDefinition and significance of intracerebral hemorrhage.Details about the FASTEST trial and its objectives.The role of the Mobile Stroke Unit in advancing research.Part 2: StrokeNet and the Future of Stroke CareSegment 4: StrokeNet's Origin and OperationsThe inception of StrokeNet and its operational framework.Examples of clinical trials conducted through StrokeNet.Enhancing patient involvement in clinical research through StrokeNet.Segment 5: Challenges in Stroke Clinical TrialsDr. Broderick's insights on the biggest barriers in conducting clinical trials for stroke.Segment 6: Redesigning Stroke CareDr. Broderick's vision for redesigning the stroke care pathway if giv New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

64 min

August 31, 2023

Redefining Recovery: Unleash Your Potential with Sean Entin, aka the Stroke Hacker

Chime In, Send Us a Text Message! In Episode 59 of the show we sat down with stroke survivor Sean Entin aka the Stroke Hacker. Despite being paralyzed on his left side, Sean learned to walk, talk, drive, and speak in front of audiences, inspiring people to free their minds and bodies after a traumatic event. His mission is to help stroke survivors, caregivers, and families reduce anxiety, regain independence, and discover hope for a better future.Sean graduated from the University of Southern California with an emphasis in entrepreneurship. He went on to co-found two startups that went public; he even worked out with Navy SEALS to improve his fitness for fun. And with all this happening, he remained a dedicated husband and father of two young daughters.Then in 2011, on Thanksgiving weekend, it happened. Sean suffered a massive stroke at age 39. While induced into a 10-day coma, the neurosurgeon performed a craniectomy. That left Sean with a long road to recovery, but he never gave up. Despite Sean’s grim prognosis, he defied the odds and birthed his mantra, “I can, I shall, I will.”Sean's journey has inspired him to launch Stroke Hacker, a program and community aimed at helping stroke survivors, individuals with traumatic brain injuries, and caregivers. Sean provides one-on-one coaching, encouraging survivors to face new challenges and helping them plan a recovery road map.For those who have suffered brain injuries, the Stroke Hacker Community is a place to share stories, accomplishments, and tips for improving overall health and wellness after a TBI. Subscribe at strokehacker.com to start receiving tips and insights into TBI recovery, or visit Stroke Hacker on social media.Show Mentions and Resources:Subscribe to our Know Stroke Member Newsletter to receive David's article on 'The Rhythm of Stroke Recovery' and for more information on music and gait rehabilitation after stroke be sure to listen to our previous interview with Brian Harris, Co-Founder and CEO of MedRhythms.For those who have suffered brain injuries, the Stroke Hacker Community is a place to share stories, accomplishments, and tips for improving overall health and wellness after a TBI. Subscribe at strokehacker.com to start receiving tips and insights into TBI recovery, or visit Stroke Hacker on social media.Show Credits:Music intro c New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

53 min

August 4, 2023

Translating Research into Practice: A Discussion with Professor Avril Drummond

Chime In, Send Us a Text Message! Know Stroke Podcast Episode 58: Interview with Professor Avril DrummondAbout our Guest:Avril Drummond is Professor of Healthcare Research and an occupational therapist. She qualified as an occupational therapist from the University of Ulster, undertook her MSc in Rehabilitation from the University of Southampton and her PhD at the University of Nottingham.Accomplishments:Fellow of the College of Occupational TherapistsPrevious Chair of the UK Stroke Forum- a coalition of 32 national multi-disciplinary organizations involved in stroke from across the UK committed to improving care for people after strokePrevious Board Member, Derby Teaching Hospitals NHS Foundation TrustMember of the RCP Intercollegiate Working Party for strokeDeputy Chair HEE/NIHR ICA, Clinical Lectureship and Senior Clinical Lectureship Panel.Editor in Chief of Clinical Rehabilitation.Although Avril's main areas of interest are stroke rehabilitation and conducting randomized controlled trials, she is interested in all aspects of rehabilitation research. She has conducted trials and service evaluations of stroke units, occupational therapy pre-discharge home visits, falls reduction/management, interventions for people with MS, traumatic brain injury, low back pain and total hip replacements. She was one of fifteen woman identified by World Stroke Academy as an International Women in Stroke in 2021.Avril is currently conducting research into fatigue after stroke, which we discussed in this interview. She also works with falls, memory rehabilitation, tendon injuries, vocational rehabilitation, and upper limb recovery after stroke.Connect with Professor Drummond on Twitter @AvrilDrummond1Show Credits:Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Be sure to give the show a like and share, & follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

55 min

July 22, 2023

Against All Odds: A Stroke & Carotid Artery Dissection Survivor's Urgent Plea for Awareness

Chime In, Send Us a Text Message! On Episode 57 of the Know Stroke Podcast we sit down with Stacy Quinn. Fueled by frustration and stress after being misdiagnosed by several doctors, Stacy felt lost on her road to recovery. She found herself on the precipice of never talking about what happened to her and living as a silent statistic: 1 in 5 women will have a stroke in her lifetime, and 3 in 100,000 people have a spontaneous carotid artery dissection. But she didn’t. Instead, she viewed it as a moment of opportunity to help others.Understanding the power of information, she created My Stroke of Hope, a resource for people affected by carotid artery dissection and a platform to raise awareness of stroke in young women. Stacy uses her personal experience to raise awareness of carotid artery dissection and stroke symptoms and prevention with the hope of saving lives and supporting survivors.From her 20-year career working in corporate communication for Fortune 500 healthcare and financial services companies, Stacy brings a track record of integrity, creativity and passion to her advocacy work.Mentions and Resources for this Episode:To learn more about the My Stroke of Hope and connect with Stacy, please visit her website: https://www.mystrokeofhope.com/aboutNominate Ralph Preston for CNN Heroes Award- (Time Sensitive - closes 7/31/23)https://www.cnn.com/specials/cnn-heroes-nominationsHere's Ralph's Interview on Know Stroke Podcast Episode #31https://www.knowstrokepod.com/podcast/episode/c956ba21/interview-with-ralph-preston-founder-of-stroke-buddiesMichael J Fox documentary "Still" about his acting career and life with Parkinson's Disease (PD) streams exclusively on AppleTV+Show Credits:Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Be sure to give the show a like and share, & follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

50 min

June 26, 2023

From a single weekend stroke caregiver and survivor retreat to a nationwide stroke support mission

Chime In, Send Us a Text Message! In Episode 56, we sat down with the United Stroke Alliance (USA) Co-Founder and Executive Director Marylee Nunley and CEO Larry Schaer to discuss how this dynamic duo has grown the alliance from a single person in a single community, to its expansion and now having offered 300 Retreat and Refresh Stroke Camps throughout the country. The Retreat & Refresh Stroke Camp program (now a division of the USA) was first developed in 2004 by Marylee & John Nunley (Founders) following John’s stroke in 2001. We discuss the USA team’s stroke support outreach efforts and how they have extended into communities throughout the country with their stroke awareness and prevention programs. The team estimates they have now educated millions of people on the signs of stroke as well as have supported thousands of stroke survivors, caregivers and their family members in their stroke recovery journeys. About the United Stroke AllianceThe United Stroke Alliance (USA) team is made up of passionate individuals who tirelessly strive to make a difference in not only stroke survivors and caregivers lives, but also for the members of every community through their stroke awareness and prevention programs. Next year will mark the 20th anniversary of the USA, which was founded in 2004 when one stroke caregiver, (Co-Founder Marylee Nunley) wanted to improve the quality of life for local stroke survivors and caregivers through a weekend retreat.In addition to taking a deep dive into the stroke camp experience for caregivers and stroke survivors on this episode, we also highlighted their Stroke Out Stroke Program at ballparks country wide to raise awareness for their BE-FASTER! campaign to know stroke warning signs and take action through emergency response and 911. We also mentioned the work of their Youth Education on Stroke (YES) initiative to extend this important BE-FASTER! message into the public schools with brain and health curriculum focused on stroke awareness and prevention. Finally we covered the financial challenges of growing stroke awareness and survivor support programs and the stigma associated with this condition that often does not get the attention of other disorders and diseases that have more research dollars, celebrity star power and funding to support their New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

74 min

June 16, 2023

When a therapist really knows the patient perspective

Chime In, Send Us a Text Message! In Episode 55 we're joined by Michelle Ballasiotes, a pediatric stroke survivor and occupational therapist. Michelle suffered what is called a perinatal stroke which usually occurs between the middle of pregnancy and delivery. Her childhood consisted of weekly physical and occupational therapy for more than 10 years in order to gain mobility due to right hemiplegia, or paralysis on the right side of the body. She also has hydrocephalus, or an excess of cerebral spinal fluid, in her brain, resulting in having a shunt placed in her head at three days old.Some of the topics from our conversation:Surviving a stroke before birth and life with hemiplegiaLeveraging the patient experience to become an empathetic providerOvercoming the stigma & participating in adaptive sports The dating scene and intimacy as a young adult stroke survivorAdvocacy efforts with the International Pediatric Stroke Alliance Michelle also gets us thinking about starting a Pickleball for stroke survivors - you don't want to miss this one.To connect with Michelle you can find her on Facebook or Twitter.Learn more about the International Pediatric Stroke Alliance.Show Credits:Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Be sure to give the show a like and share, & follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

62 min

May 25, 2023

Senator Ben Ray Luján: A Survivor's Voice for Stroke Awareness & Policy Reform

Chime In, Send Us a Text Message! In this episode of the Know Stroke Podcast, we are honored to have special guest Senator Ben Ray Luján, who has been a dedicated advocate for stroke awareness and policy reform. Senator Luján serves as both a senator and a stroke survivor, making his insights and experiences invaluable.During the episode, Senator Luján highlights the importance of stroke awareness, particularly during the month of May, which is Stroke Awareness Month. He emphasizes the need for comprehensive policy reform and increased investments to address education and awareness gaps related to stroke.The Senator's impactful keynote address at the International Stroke Conference is also heard in this episode. His speech shed light on various critical topics surrounding stroke, leaving a lasting impact on the audience.Key discussion points covered in the episode include:Personal Journey with Stroke Recovery: Senator Luján shares his own personal journey with stroke recovery, emphasizing how this experience has shaped his advocacy work. His firsthand knowledge allows him to understand the challenges faced by stroke survivors and the importance of supporting their recovery.Reducing the Stigma Around Stroke: The episode addresses the significance of breaking the stigma around stroke. Senator Luján advocates for open conversations, public awareness campaigns, and sharing personal stories of stroke survivors to dispel misconceptions and foster a supportive environment.Investment and Policy Reform: Senator Luján stresses the need for investments and policy reforms to improve education and awareness of stroke. This includes increased funding for public health campaigns, research into risk factors and prevention strategies, and collaboration with healthcare professionals and advocacy groups to develop evidence-based educational programs.Addressing Healthcare Staffing Issues: Access to rehabilitation services is a critical aspect of stroke recovery. Senator Luján discusses the importance of addressing healthcare staffing shortages by investing in training programs and incentives to attract and retain healthcare professionals. Ensuring access to quality rehabilitation support for stroke survivors across the country is a key goal.Expansion of Broadband Connectivity for Telehealth Services: The COVID-19 pandem New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

56 min

May 18, 2023

Enhancing Stroke Rehabilitation & Recovery: Interview with Professor Julie Bernhardt

Chime In, Send Us a Text Message! In Episode 53 we were joined by Professor Julie Bernhardt, co-leader of The Florey’s Stroke theme and leads the AVERT Early Intervention Research Program. Julie believes that to impact the global burden of disability after stroke, we need to rethink, reframe and refocus our efforts to develop more effective treatments and treatment environments (hospitals) to help people recover well after a stroke.Julie is the Director of Australia’s first NHMRC Centre of Research Excellence in Stroke Rehabilitation and Recovery, a partnership that has helped build capacity and research excellence in this exciting field. She spearheads the International Stroke Recovery and Rehabilitation Roundtable task force that is identifying important knowledge gaps and setting new targets for recovery research. She also works with architects and designers to innovate rehabilitation hospital design.Episode highlights:Julie's personal experience leading to a career in PT & stroke researchA Very Early Rehabilitation Trail after stroke (AVERT)How the Florey is supporting the unique needs of young stroke survivors in AustraliaBreaking down silos with the International Stroke Recovery & Rehab AllianceLearn more about The Florey: https://florey.edu.au/Connect with Julie on Twitter: @AVERTtrialShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook New show supporter CTA for 2024-Mike Garrow Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! For more information about joining our show or advertising with us visit: https://enable4us.com Support the Show. Support the show: Become a monthly subscriber for as low as $3 per month. Click here to subscribe. Be sure to give the show a like and share, & follow plus connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit website to to learn more: https://www.knowstrokepod.com/ Show credits: Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast Connect with Us and Share our Show on Social: Website | Linkedin | Twitter | YouTube | Facebook

65 min

Know Stroke Podcast

About Know Stroke Podcast

Episodes

Underinsured, Unabandoned: StrokeOT's Commitment with Dr. Carolyn Brown

SnapCast: What's Happening Next in April?

"Better Than Good Enough": Fit to Function's Neuro Rehab Fitness Model

Stroke Thriver Spotlight: Rory Polera

Closing the Loop: OhioHealth's Path from Rehab to Community Fitness

Innovating Community Fitness: Building Bridges from Research to Post-Stroke Rehab

Become a Know Stroke Podcast Supporter!

2023