Episode 160 ICP & Me

Trigger warning this episode contains discussion of baby loss.

What if you found yourself entangled in a challenging and rare pregnancy condition, not once but twice, with a heartbreaking ending? Unravel the personal narrative of Jenny Chambers, the founder and CEO of ICP Support, as she shares her painful journey through Intra-Hepatic Cholestasis of Pregnancy (ICP). From the agony of stillbirth, the challenges of conceiving again, to her unwavering commitment in raising awareness about this complex condition, Jenny's story shines a light on the importance of support, understanding, and research for families affected by ICP.

We shift gears to shed light on the essential role of diagnosis and medical support, examining a mother's devastating account of losing two babies during pregnancy due to undiagnosed ICP. The narrative underscores the significance of self-advocacy during pregnancy and the critical need for increased awareness about potential complications. We then traverse the intricate journey of ICP research, treatment, and community support, bringing in insights from leading researchers and consultants who are pushing the boundaries in ICP treatment. We engage in a thought-provoking discussion on the impact of ICP on women's lives and the critical need for empathy and understanding from the medical community and society.

In the final part of our episode, Jenny reflects on her tireless work in raising awareness about ICP, her experiences within the NHS, and her instrumental role in connecting women with research teams. This conversation unveils advances in ICP research, the uses and limitations of sodium oxycholic acid, and the potential of new medication under trial.
Want to know more?
https://www.icpsupport.org/index.html#gsc.tab=0
Please contribute if you can to help this amazing charity keep going by donating to their end of year fund raiser.
https://bit.ly/FundingTheFutureICPSupport2023


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Thank you all for listening, My name is Florence Wilcock I am an NHS doctor working as an obstetrician, specialising in the care of both mother and baby during pregnancy and birth. If you have enjoyed my podcast please do continue to subscribe, rate, review and recommend my podcast on your podcast provider.
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